Based at Neuroscience Research Australia (NeuRA), there is a research clinic focusing on frontotemporal dementia and associated syndromes, including MND. Brain donation is when a person and their family decide to donate their brain for medical research following death. 

Brain donation is fundamental to advancing the understanding of diseases that affect the brain. However, acceptance of a donation is subject to good clinical records being made available, a recent MRI or brain scan and a blood test. Next of kin also needs to be informed and to give consent.

For more information and frequently asked questions, visit Sydney Brain Bank.

The Neurodegenerative Diseases Biobank based at Macquarie University Centre for Motor Neuron Disease Research accepts biological samples such as blood, urine, hair and skin. Find out more here: Macquarie University - Neurodegenerative Diseases Biobank (