As we approach the end of Pride Month, a month dedicated to the uplifting of LGBTQ voices, celebration of LGBTQ culture and the support of LGBTQ rights, MND NSW would like to share some resources that may be useful for our community members.
MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.
MiNDAUS is a partnership of Australian MND researchers, clinicians and organisations, which aims to develop a nationally co-ordinated and patient-centred approach to MND research, care and policy development.
Around 10% of people diagnosed with MND have a ‘familial’ form of the condition; meaning there are two or more affected members within their family. Most people diagnosed with MND have what is called ‘sporadic’ MND, so although there may be a genetic element involved, other family members will not be affected.