Welcome

MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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Virtual Walk to d'Feet MND packs have arrived! 

Register your Virtual Walk to d'Feet MND team of family members or work colleagues now, and not only will you be supporting people living with motor neurone disease, but you'll also receive a host of goodies to help make your Walk a success.

DonateLife Week will be celebrated this year from Sunday 24 July to Sunday 31 July.

Most Australians believe it’s important to be an organ and tissue donor, yet only one in 3 are currently registered. This week aims to raise awareness and encourages more people to talk to their family and to register to become a donor.

The Mobility Parking Scheme provides special parking conditions and concessions to eligible people with a disability.

All Australian states and territories participate in the Australian Disability Parking Scheme, so you can use a valid and current permit Australia-wide. 

As we are currently facing increasing cases of community transmission, we will try to provide you with the latest information about how you can keep yourself and your family safe, and find out what support is available.

Updated July 2022

The easing of public health measures and travel restrictions has created an increase in both COVID-19 and Influenza (the Flu) cases during winter.

Both respiratory illnesses can be dangerous, and it's recommended that everyone takes steps to stay protected.

MiNDAUS is a partnership of Australian MND researchers, clinicians and organisations, which aims to develop a nationally co-ordinated and patient-centred approach to MND research, care and policy development.

Around 10% of people diagnosed with MND have a ‘familial’ form of the condition; meaning there are two or more affected members within their family. Most people diagnosed with MND have what is called ‘sporadic’ MND, so although there may be a genetic element involved, other family members will not be affected.

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About us

What is MND NSW and what do we do?

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Find out more about MND

Resources for families and health professionals

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Including MND NSW in your Will

Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.

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