Welcome

MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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In December 2023, John was diagnosed with MND, a time that John and his wife describe as ‘terrifying’.

By January the following year, John had become part of the MND NSW Advisor program, getting him on track to receive the support he needed, and providing information about motor neurone disease and how it may affect him and his family.

With his fans eagerly awaiting the tasty treats Don delivered to them each week, it was only a matter of time before he was asked to share his culinary secrets. Thankfully, he has – in the form of the cookbook Don’s Delights.

As a retired Pastor, Don McMurray has guided many through life. Now, he’s guiding people through the optimal way to make passionfruit slice, banana bread, liquorice pumpkin soup, biscuits and much more, selling his cookbook through Club Charlestown to raise funds for MND NSW.

A busy October saw the MND NSW Info Line respond to over 100 enquiries. These enquiries covered a variety of topics including, accessing MND information, the Carer Program, Frontal-temporal Dementia and headmaster collars. Here are your top 5 questions for the month of October.

  

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Location

(click Location for map)

MND NSW Centre
Building 4, Gladesville Hospital
Victoria Road
Gladesville NSW 2111
Australia

Post

MND NSW
Locked Bag 5005
Gladesville NSW 1675
Australia

Phone

Telephone: 02 8877 0999
Freecall: 1800 777 175 (NSW and ACT)
Fax: 02 9816 2077

The National Relay Service

The NRS can help if you are d/Deaf, hard-of-hearing or are experiencing changes to your speech and find it hard to speak to hearing people on the phone. A Relay Officer can change voice to text or text to voice, they can also change Auslan to English and English to Auslan. Relay calls can be made to anyone on the wider telephone network.
Find out more and sign up: https://www.accesshub.gov.au/about-the-nrs

Translation and Intepreting Service (TIS National)

TIS National is an interpreting service for people with limited English. We can arrange an interpreter for the appointments you have with our staff via the phone, video or in-person. You may have told us you need an interpreter when you completed our online intake form. You can also let us know you need an interpreter by using the online enquiry form below. Find out more about TIS National: https://www.tisnational.gov.au/

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About us

What is MND NSW and what do we do?

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Find out more about MND

Resources for families and health professionals

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Support our work. Buy MND NSW merchandise here.

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Including MND NSW in your Will

Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.

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