What We Do

MND NSW Advisors assist people with motor neurone disease connect to the services they need. MND Advisors also offer ongoing information to families and service providers as questions arise or needs change. Find out more

People with motor neurone disease often require special equipment to continue living at home. One of the major roles of MND NSW is to help people with motor neurone disease get access to equipment, as soon as the need for equipment arises. Find out more

Coordination of Support is a service of MND NSW provided to NDIS participants to assist them with the implementation of their National Disability Insurance Scheme (NDIS) plan. Find out more

Are you newly diagnosed with motor neurone disease? Caring for someone with MND? Would you like to ask an expert panel your questions about MND? MND NSW conducts regular education and information sessions for people living with motor neurone disease, family members, carers and friends.

Are you a family member or friend providing care for a person with motor neurone disease?

Services offered by MND NSW to people living with motor neurone disease are not only available to the person who has been diagnosed with MND, but also to family members or friends who are caring for them.

MND Genies is an online support network and Facebook group for people who have a motor neurone disease related genetic mutation, but do not have MND. The aim of MND Genies is to provide a space where people can connect and share their experience of having an MND related genetic mutation.

Young carers play a big part in the journey of someone diagnosed with MND, and they need a robust support network. The MND National Youth Hub provides information, support and tools for young carers ages 5 to 24 years old.