What We Do

MND NSW provides information, support and education about motor neurone disease for people living with motor neurone disease, their families, friends and carers.

If you have been diagnosed with MND and would like to access support and services, please complete our Intake form online.

MND Info Line

Do you have a question about motor neurone disease? Have you just found out that a family member, friend or colleague has MND and you want more information? Are you thinking about attending an information session but want to find out more before you make the decision about going?

MND Advisor

MND NSW Advisors assist people with motor neurone disease connect to the services they need. MND Advisors also offer ongoing information to families and service providers as questions arise or needs change. Find out more

Equipment - FlexEquip

People with motor neurone disease often require special equipment to continue living at home. One of the major roles of MND NSW is to help people with motor neurone disease get access to equipment, as soon as the need for equipment arises. Find out more

Coordination of Support NDIS

Coordination of Support is a service of MND NSW provided to NDIS participants to assist them with the implementation of their National Disability Insurance Scheme (NDIS) plan. Find out more

Education and information sessions

Are you newly diagnosed with motor neurone disease? Caring for someone with MND? Would you like to ask an expert panel your questions about MND? MND NSW conducts regular education and information sessions for people living with motor neurone disease, family members, carers and friends.

Support groups and coffee mornings

MND support groups and coffee mornings provide the opportunity for people living with motor neurone disease to meet together regularly to chat and learn from each other. These groups maybe held in person or online, please see our events page or contact your MND Advisor for more information.

Carer support

Are you a family member or friend providing care for a person with motor neurone disease?

Services offered by MND NSW to people living with motor neurone disease are not only available to the person who has been diagnosed with MND, but also to family members or friends who are caring for them.

Membership

You do not have to be a member to receive support and services from MND NSW. However, if you want to show your support for people living with MND and support MND NSW you can join MND NSW as a member.

MND Genies

MND Genies is an online support network and Facebook group for people who have a motor neurone disease related genetic mutation, but do not have MND. The aim of MND Genies is to provide a space where people can connect and share their experience of having an MND related genetic mutation.