Blog

Together We Can... three small words, that mean so much to our fundraising team.

They highlight the important role our community fundraisers play in raising vital funds for us. They emphasise the important work done by our volunteers selflessly giving their valuable time and skills at events, doing administration work, as ambassadors for our Association and so much more. These three words enable us to reflect on what we can achieve if we all work together towards a shared goal - providing the best possible support and assistance for each and every one of our members and their families.

Our Walks are a great example of what we can achieve together. They bring together family, friends and colleagues to show people with MND that they are not alone in this journey.

Entertainment Books are a great way to save money while enjoying a night out or a day with the family.  20% of every membership sold on the Entertainment Book Motor Neurone Disease Association of NSW link below is contributed back to MND NSW. Help us achieve our goal by sharing the link below with your friends and family. Thanks for your support! Entertainment Memberships include over $20,000 worth of valuable 2-for-1 and up to 50% offers from many of the best restaurants, arts, attractions, hotel accommodation, travel and much more! Entertainment Books are available to purchase for:

MND Decision Tools is a new Australian website developed to assist people with MND make decisions for their care and quality of life, particularly when the decision is hard to make, or there is no clear answer. Tools for three topics - gastrostomy/PEG, predictive genetic testing and assisted ventilation (NIV) - have already been developed and are ready to use, with other topic areas to be developed in the future. Each tool explains the advantages and disadvantages related to the decision and guides you to consider your personal feelings about each choice.

The MND Decision Tools project is led by Dr Anne Hogden and the site was developed in consultation with an expert panel of people with MND, their family members, health professionals, MND Association representatives and researchers. MND Decision Tools is available free online and you do not need to register to use the site. See https://mnddecisiontools.com/ for more information.

Thank you to Don McMurray who organised his 5th MND Charity Concert in support of MND NSW. It was another enjoyable afternoon of musical items and comedy performances with this year's concert raising $2,803. We would also like to thank Nick and Helen Moretti who attended the event on behalf of our association. Thank you also to the Grace Evangelical Church who continue to provide the use of their auditorium at no cost. Pictured is the Sing Australia Choir who performed three segments at the concert.