News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.
Thank You to Yarralumla Uniting Church
We'd like to say a big thank you to Bronwyn Hendy and the Yarralumla Uniting Church (YUC) for their Hymnfest and Afternoon Tea for MND fundraiser...
MND Care Practices in Australia: Healthcare Survey
Healthcare professionals who currently provide, or have recently provided, care for people living with MND are invited to take part in a short survey...
MND is a Notifiable Disease in NSW - What Does it Mean for You?
On 1 September 2026, motor neurone disease officially became a notifiable disease in NSW, making it the very first jurisdiction in Australia to report...
Ways to Support People Living with MND
Motor neurone disease (MND) can change life in an instant, for the person diagnosed, and for everyone who loves them. Across New South Wales, the ACT...
Thank You to Our Community Fundraisers
We’ve had some amazing members of our community hold fundraisers for us recently - from Ice Bucket Challenges to afternoon teas, fitness challenges an...
Cognitive and Behavioural Changes in MND and ALS
When someone is diagnosed with motor neurone disease (MND), the focus understandably tends to fall on movement, muscle weakness, and gradual changes i...
Sandra Bullock Speaks Out on Late Partner’s MND Experiences
Sandra Bullock is the latest high-profile personality to speak of her experiences with MND, known as ALS or Lou Gehrig’s disease in the US, after her...
Top 5 Frequently Asked Questions from July 2026
Each month the MND InfoLine receives a wide range of enquiries from people living with MND, their families, and health professionals. We have rounded...
Keep Connecting with Communication Aids this Speech Pathology Week 2026
MND can affect the nerves and muscles used for communication including speaking, facial expressions, gestures, and swallowing. Approximately, 80% of p...
Dying to Know Day is about Starting Important Conversations
Dying to Know Day (8 August 2026) is a time for everyone to have important conversations about death and dying with purpose, love, and a sense of lega...
Vale Bob Montgomery
We are deeply saddened to hear of the sudden passing of Bob Montgomery. For many years, Bob dedicated himself to raising vital funds and awareness for...
We Welcome Shane 'Richo' Richardson to the MND NSW Board
We'd like to give a warm welcome to Shane 'Richo' Richardson, who has just joined the MND NSW Board. He brings more than 30 years of executive leaders...