News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.
Volunteer Spotlight - meet Trish
Trish Carling has been a familiar face at our ACT Support Group meetings for over a year now. She began volunteering for MND NSW in 2024, keen to supp...
Let's Party Merriwa
In January, Leanne Hook and the Merriwa and District Chamber of Commerce and Industry Incorporated held the ‘Let’s Party’ event in support of MND NSW....
What you told us about our strengths and opportunities for improvement
In late 2025 we gathered feedback from people accessing our services via an online survey. Your feedback highlights both our strengths as well as some...
Top 5 Frequently Asked Questions from January 2026
Receiving a diagnosis of Motor Neurone Disease (MND), supporting someone living with MND, or caring for a loved one can raise many questions. Here are...
Navigating Motor Neurone Disease (MND), Sex, and Intimacy
Whether you take part in celebrating Valentine’s Day or not, it has become a significant cultural and commercial event in Australia. This day can stil...
Community Fundraising Champions – Jennifer Barrett and Robert Akers
Since 2021, Jennifer Barrett, Robert Akers, and committee members Bev Seiver, Mia Clancy, Matthew Dumbrill, Alex Connell, have been hosting the Andrew...
Top 5 Frequently Asked Questions from December 2025
Welcome to this month’s insights from the MND NSW Info Line! We have rounded up the top 5 questions we’ve been asked lately from across NSW, ACT and N...
Happy New Year from the MND NSW Carers Program
2025 was a big year for the MND Carers Program…. And 2026 is set to be even bigger! Let’s recap what we achieved together…. Our goal was to boost the...
Every Moment Matters - Evaluating the Impact of MND
Being diagnosed with MND brings changes, challenges and extra considerations for a person living with the condition, as well as to their carers a...
Top 5 Frequently Asked Questions from November 2025
Welcome to this month’s round up of the most common questions asked through the MND NSW Info Line! Whether you are living with MND, supporting a loved...
Getting Prepared for Holiday Period - Things to Think About as MND Carers
The traditional festive season is upon us…putting up Christmas trees and decorations, pondering presents to give to others, planning for celebrations,...
MND NSW Privacy Policy
We have reviewed the MND NSW Privacy Policy, in accordance with legislative responsibilities. If you would like to review our Privacy Policy you can r...