MND impacts the lives of many – the person with MND, and their family and friends. Today we are posting a survey to the family carer of MND NSW members who died from MND in 2016, 2017 and 2018. The survey is part of a research study being conducted by La Trobe University which hopes to gain insight into the experiences of family carers whose family member died from MND between 2016-2018. This valuable information will help us to better understand the needs of carers. We encourage you to participate if you receive a survey in the post by completing and returning the survey in the reply paid envelope provided by 5 June. Alternatively you can complete the survey online at https://is.gd/mndbereavementsupport. If you prefer a paper copy and you have not received one in the post by 23 May, please let us know. If you have any questions regarding the study, please contact Leanne Jiang on
Survey for family carers whose family member died from MND between 2016-2018

Latest News

Thank You to our Supporters
As we approach the end of the financial year, I want to take a moment to personally thank you—our donors, fundraisers, walkers, and supporters—fo...

Wellington Correctional Centre Staff Rally for MND NSW
We'd like to sincerely thank the staff at Wellington Correctional Centre who recently held an MND Ice Bucket Challenge in support of families facing M...

Julie-Ann and Jayne's MND Story
Jayne Christian is a carer for her mum, Julie-Ann Christian, who is living with MND and has shared their story. Jayne is currently Artist in Residence...

Top 5 Frequently Asked Questions from May 2026
Welcome to this month’s insights from the MND NSW Info Line! We have rounded up the top 5 questions we’ve been asked lately from people living with MN...
“We can't do this alone. But together, we're unstoppable.”