Online and phone support for carers is currently available via the Carer Gateway ph. 1800 422 737 or The Australian Government recently announced in person services for carers will commence from April 2020. In person services will include carer support planning, coaching, peer support, counselling, carer directed packages and emergency respite care. These services will be provided by regional delivery partners including Carers NSW. For more information see Carers NSW

Researchers at the University of Canberra are looking to explore the connection between patient-caregiving relationships, chronic/complex illnesses and caregiver wellbeing. They are seeking adults who provide informal care for another adult with a chronic or complex health condition, including motor neurone disease. The study involves participants completing an online survey, which should only take 10 minutes of your time. You can access the survey directly at or for more information contact PhD student, Kath Carleton This email address is being protected from spambots. You need JavaScript enabled to view it..  
This project has received approval from the University of Canberra’s Human Research Ethics Committee (HREC 0389).

Canberra Brass Inc., supported by The Band of the Royal Military College Duntroon, recently held a charity concert to support the work of our association. We heard that the concert went fabulously well and was an afternoon enjoyed by all who attended. Our thanks to Canberra Brass Inc. and to our volunteers who attended to help on the day. The event raised $2,086 and will be put towards assisting people living with MND.

A big thank you to the Nelson Bay Junior Rugby League Club who supported our association with their MND NSW Charity Jersey Fundraiser which raised $3,000. The event was held in honour of Steve Lingard who has been a significant contributor to the Club and is living with MND. Thank you to everyone who donated and supported this event. 

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