The research project, ALS Quest, is approaching its deadline on 28 May 2021. This study is looking for risk factors that might contribute to the development of motor neurone disease (MND) and is an online anonymous questionnaire which asks a series of questions that may provide clues as to what factors trigger MND in some people. 

Anyone is welcome to complete the questionnaire - people with a sporadic or familial form of MND and their relatives and also people without MND, in order to compare lifestyle factors. 


This questionnaire can be completed regardless of geographical location, so please share with any friends or family who may live overseas who would be happy to contribute.

The questionnaire, designed by Associate Professor Roger Pamphlett at the University of Sydney, and instructions for how to complete it can be found at 

This research study will be avaible for the next 6 weeks before the data will then be analysed in order to publish the results. If you would like to contribute to this study then please complete the questionnaire before the deadline on May 28.

You can also see Associate Professor Roger Pamphlett discussing his research in this recording from our 2019 Ask the Experts event: 2019 Ask the Experts 1 What are the risk factors of MND? - Roger Pamphlett - YouTube

This study has been approved by the Ethics Review Committee (RPAH Zone) of the Sydney Local Health District.

Please note, if you have previously submitted a response to the ALS Quest questionnaire, there is no need to complete it again. If you have any queries or concerns regarding the survey then you can contact the researchers directly via email This email address is being protected from spambots. You need JavaScript enabled to view it.

Subscribe to news and updates