April 2017

What's on in MND Week 7-13 May 2017

Each year the first full week of May marks MND Week. From 7 to 13 May 2017 our focus is Life Measured in Moments #7DaysWithMND but we can’t do it without you. 

MND NSW assists people with MND live life to the fullest, not being dictated to by MND. Our equipment enables members to remain living at home, go on a holiday or attend a special event. We provide subsidies for members that reduce the ongoing cost of non-invasive ventilation so the task of breathing, that we all take for granted, is easier. We provide information for people newly diagnosed with MND when questions need to be answered. Our communication and computer access devices provide the means for people to stay connected when speech and arm movements are hard. MND NSW educational programs and support groups inform and link people with MND, their family and friends. We help make every moment count.    

Stay up to date with what is happening in MND Week by reading about the planned events here and by watching our Facebook page. And make sure you let us know of any events taking place in your area!

Wheelchair accessible Vivid Sydney light installations 2017

Over 23 nights between 26 May to 17 June, Vivid Light illuminates Sydney and precincts with mesmerising colour. More than 65 lighting installations will transform the city from 6pm to 11pm each night. View all light installations that are wheelchair accessible. https://www.vividsydney.com/access-and-inclusion-light

Sweat for MND

Thank you to Stephen Johnson of Eternally Fit who held the second Sweat for MND event during April. The weather was kind and participants took part in a 30 minute outdoor group exercise class. Our thanks also to everyone who turned out to support MND at this great event. 

Dale's Day

This was the second Dale's Day event organised by Joanne Moroney to raise funds for MND NSW. Although the cricket match was rained out this year the afternoon was still enjoyed with great food, family, friends and some backyard games. A fantastic $2,312 was raised. Thank you to Joanne for the contined support!  

Science in the Cinema 2 June 2017

The Australian Society for Medical Research is presenting The incredible life of Stephen Hawking:The Theory of Everything on Friday 2 June, during Medical Research Week 1–9 June 2017, at Science in the Cinema, Palace Cinemas, Leichhardt. Tickets $15 + booking fee. This year‘s event is not only an insight into the great mind of Professor Hawking, but also an opportunity to raise awareness of the impact of this devastating disease on the 2,000 Australians currently living with MND. Professor Matthew Kiernan from the University of Sydney will talk about MND followed by a short Q&A session. More information here.