June 2017

NSW Health new Making an Advance Care Directive information booklet

NSW Health has released a new Information Booklet to help people understand and complete an Advance Care Directive in NSW. The Information Booklet outlines some key questions that people face when discussing Advance Care Directives, these include:

• what is an Advance Care Directive?
• why an Advance Care Directive is important?
• how to prepare for making an Advance Care Directive
• how to make an Advance Care Directive
• when it applies and when is it valid.

In this package you will find an Advance Care Directive form to complete and an Information Booklet to help you complete your Advance Care Directive. More information here http://www.health.nsw.gov.au/patients/acp/Pages/acd-form-info-book.aspx

A great turn out for our Walk to d'Feet MND Canberra

What a wonderful roll up we had in Canberra for our Walk to d’Feet MND. Over 450 people turned out on a chilly but sunny Canberra morning to show their support for people living with MND. This year we were able to do the Walk around Lake Burley Griffin and what a great atmosphere we had as families and friends headed off around the Lake. It’s always a stunning sight watching that 'sea of blue with a purpose' as the walkers head off. A big thank you to Nigel Ah Wong from the ACT Brumbies who helped promote the Walk in the lead up to the Walk, and also led the Walk on the day.

Run MND

A big thank you to Sophy Townsend who for the second year organised Run MND in support of individuals and families living with MND, and  for research. A group of 86 runners and walkers took part following the Sutherland 2 Surf route ending at Dunningham Park in Cronulla. The event raised $10,000 to support families with much needed equipment and support, as well as $10,000 for research. Thank you to everyone who participated and donated to this wonderful event! 

 

Darwin2Perth4MND&HD

Day 38 and the finish of Bob's ride. Bob formally finished at The Niche in the grounds of QE11 Hospital in Perth. This centre is part of the Neurological Support Centre and houses most of the organisations who are involved in providing services and support for those with neurological conditions, including MND. Congratulations Bob on another mammoth effort raising funds and awareness for MND and Huntington's.

Are you an adult sibling of someone with a disability?

Carers NSW invites you to complete a short online survey on your experience of being the sibling of a person with a disability, including your knowledge of existing supports, identifying any supports or information you would like to access, and what you would like service providers to know about your sibling experience. Click here to access the survey or if you have any questions, contact Lorraine Villaret, Carers NSW Project Officer on This email address is being protected from spambots. You need JavaScript enabled to view it.