In early 2017 Joanna Finlay’s husband Royce (pictured centre) was diagnosed with MND. For Royce’s 70th birthday in September, Joanna and Royce decided to have an afternoon tea party and, in lieu of presents, they would do something for MND NSW. Joanna and friends shared the details by word of mouth, hardly expecting a big response. “All we wanted was for people to support a good cause and we thought maybe we would raise $1,000 towards research.”

There were many community events held across NSW and ACT during 2017. Special thanks go to each and every organiser who gave so generously of their time to raise funds for MND NSW and awareness about MND. Thank you to the following organisers and supporters:

The International Symposium is the largest medical and scientific conference on ALS/MND in the world. It is the premier event in the ALS/MND research calendar breaking records once again at the end of 2017 with over 1200 delegates from 40 countries demonstrating the energy and dynamism of the global ALS/MND research community. Here is an update on Symposium happenings and news from Carol Birks, CEO, MND Australia.

"Over the three-day event the concurrent scientific and clinical sessions

The Allied Professionals Forum enables the sharing of ALS/MND care and support innovations to help guide practice worldwide. Over 250 delegates attended 15th Annual Allied Professionals Forum, Boston, in December 2017 to hear 16 presentations covering a wide variety of topics  on resource development, carer and family support, cannabis use, respiratory care and innovative approaches to assistive technology provision. You can watch

From 8 to 10 December 2017, ALS/MND researchers, advocates and people living with ALS/MND from across the world, flew into Boston, USA to learn about and discuss the most recent developments in ALS/MND research at the 28th International Symposium on ALS/MND. You can watch the recap

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