ALSUntangled reviews alternative and off-label treatments for people with ALS (PALS). Recently, ALS Untangled have reviewed the use of a
class of medications called antiretrovirals (ARVs) for treating ALS/MND (in response to 1400 requests). Retroviruses are a family of RNA viruses defined by their ability to integrate themselves into the host cell DNA. The review found that based on the lack of evidence for use of ARVs in PALS who test negative for human immunodeficiency virus (HIV) and human t-cell leukemia virus (HTLV) they cannot recommend ARVs as a treatment for ALS. They do note that there are two ongoing trials of ARVs in PALS and they look forward to the results. You can read the full paper here https://www.tandfonline.com/doi/pdf/10.1080/21678421.2018.1465248?needAccess=true and find our more about ALSuntagled here http://www.alsuntangled.com/.
ALSUntangled review of antiretrovirals

Latest News

Top-5 Frequently Asked Questions from June 2025
Welcome to this month’s insights from the MND NSW Info Line! We have rounded up the top 5 questions we’ve been asked lately from across NSW, ACT and N...

Supporting your loved one at end-of-life: General strategies for carers
MND is currently a life limiting illness. As it progresses, carers will find themselves in the position of supporting their loved one with MND at end...

Episode 3 of Conversation with a Neurologist is Out Now!
In this episode, Dr Sadaf Warraich speaks with Professor Steve Vucic, who discusses current MND treatments including Riluzole, Edaravone and Toferson...

Community Fundraising Champions – Jo Moroney
Since 2015, Jo Moroney has been hosting the Dale’s Day cricket match in honour of her son Dale Kenny. Sadly, Dale was diagnosed with MND when he was j...
“We can't do this alone. But together, we're unstoppable.”