The holiday season is almost upon us and it is time to start planning a fabulous get away. Here are some ideas to get the holiday inspiration flowing and some practical tips to consider when you start planning.
The following information has been adapted from the MND Vicotria, Travelling Factsheet. We thank MND Vic for sharing their resource with us. View MND Victoria’s short film to hear the experiences of people with MND who have travelled and video about accessing the community.
Planning Tips
Contact your neurologist before planning to travel. The neurologist can advise about the timing of your holiday, any medical clearance you might need to fly, provide you a letter stating your diagnosis, any other special requirements you might need and their contact details.
You may need a specialised breathing assessment to determine whether you are fit to fly. Allow time for this assessment to be done before you make travel plans. It may be possible to travel with non-invasive ventilation, make sure you discuss this with your respiratory specialist.
Ask your Occupational Therapist and Dietitian for travel tips, especially if you use a feeding tube.
Booking Flights
Contact your Airline about Assisted Flying and let them know if you are taking any equipment or have particular access requirements.
Travel Insurance
It can be difficult to access travel insurance when you have an MND diagnosis. Make sure you understand what you are covered for. You may consider engaging an insurance broker to ensure all requirements are covered.
Reciprocal healthcare agreements
There are 11 countries with reciprocal healthcare agreements with Australia. These are agreements where visitors can get public funded medically necessary care. Visit Services Australia website for more information.
Create an Emergency Plan
There are downloadable emergency care plan templates and cards available from Carers Gateway. Leave a copy with a family member or friend and take a copy with you.
Booking Accommodation
Trip Advisor and Air BnB let you search for places with accessible features. We recommend checking directly with the accommodation provider that the accessible features will meet your needs.
Change Rooms and Toilets
Changing places are accessible public toilets that provide a ceiling hoist, full-sized change table and large circulation space (if using a hoist, you need to take your own sling) Changing places can be found all over Australia.
A Master Locksmith Access Key (MLAC) will give you access to dedicated public facilities including locked disabled toilets. Some Local Councils subsidise the cost of the key.
Packing Tips
- Carry a letter from your doctor listing all medications.
- Carry medications in original packaging.
- Take thickener with you if you require it.
- Include your emergency plan.
- If using a hoist, take your sling/s.
Other
Companion Card: Allows the cardholder’s support person free entry into participating venues and events. To find out more visit the Department of Social Services website.
Transport Subsidy: Provides a taxi fare subsidy of 50% up to a maximum subsidy of $60. Visit the relevant State or Territory Government website for details.
Fun things to do
Let’s not forget the most important part of a holiday – Having fun!
Depending on your holiday vibe, here are some things you might like to do if you’re holidaying in Australia:
Go to the beach
Check out the Accessible Beaches Website to view the directory of accessible beaches in Australia.
Also look up the local council you are visiting for information about beach wheelchairs. For example, Shoalhaven City Council has 10 available free of charge for beaches across the City.
Visit a National Park
NSW national parks offer a number of accessible places suitable for people with disability. Around Sydney, Royal National Park has wheelchair access areas as do many places in Sydney Harbour National Park.
Accessible Experiences
The Accessible Experiences website has lots of different types of experiences to choose from. They include diving in Tropical North Queensland, meeting alpacas on the Central Coast, touring the Blue Mountains, whale watching and water skiing.
Contact your MND Advisor
Contact your MND Advisor for information about holidays and travel tailored to you or contact the MND Infoline on 1800 777 175