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MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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This week is National Palliative Care Week (NPCW) which aims to raise awareness and understanding of palliative care in Australian communities.

The theme of this year’s National Palliative Care Week (NPCW); ‘Palliative Care It’s your right’, reinforces that palliative care is a universal human right and that all Australians should have access to high-quality palliative care when and where they need it.

MiNDAUS is a partnership of Australian MND researchers, clinicians and organisations, which aims to develop a nationally co-ordinated and patient-centred approach to MND research, care and policy development.

Times of celebration and significant events, like Mother's Day, can be a particularly difficult time for many people. It’s a day that is often seen as a time to celebrate and spend time with loved ones, but it can also be yet another reminder of a loss, and this can trigger emotions of grief and sadness.

Special occasions like Easter can tend to focus on enjoying and sharing food with family and friends. This can be a challenging time for someone with MND, who may have a modified diet or a PEG, and they may feel that they are missing out.

So, we have some suggestions for ways to make enjoyable treats for those with dysphagia so no one misses out on their Easter chocolate!

Around 10% of people diagnosed with MND have a ‘familial’ form of the condition; meaning there are two or more affected members within their family. Most people diagnosed with MND have what is called ‘sporadic’ MND, so although there may be a genetic element involved, other family members will not be affected.

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