June 2024

Leaders in the motor neurone disease field arrive in Canberra today

Every day two Australians are diagnosed with motor neurone disease (MND) and two die from the disease. With no cure and an average life expectancy of just 27 months, we need more investment in MND to support people living with the disease and towards developing effective treatments.

Today, MND Australia, the national peak body for MND, together with the Parliamentary Friends of MND, is hosting an event at Parliament House in Canberra to celebrate Global MND Day and honour 30 leaders in the MND field in recognition of MND Australia’s 30th anniversary.

The Day of Hope and Remembrance 2024: Thank you for attending

Thank you to everyone who joined us at this special and inspiring event. 

Stay Warm with MND Beanies, Socks, Hoodies and Scarves This Winter

Stay warm while you support the important work being done by MND NSW to improve the lives of people living with MND and their families. From classic beanies and scarves to hoodies and crew socks, MND NSW's high-quality products are a great gift for yourself or a loved one! 

Top-5 Frequently Asked Questions: May 2024

 We received lots of questions on a variety of topics at the MND info line in May, including, robotic feeders, booking accommodation along with counselling for children. Here are your top-5 questions and answers.

Early Signs of Motor Neurone Disease

Motor Neurone Disease (MND), also known as Amyotrophic Lateral Sclerosis (ALS), is an uncommon but devastating disease that affects the nerves (neurons) controlling muscles.Over time, these neurons degenerate and die, leading to progressive muscle weakness.

On average, two Australians are diagnosed with the condition each day, and sadly MND currently has no cure.  In 5-10% of cases, MND runs in families and several genes have been linked to causing MND. In the remaining 90-95% of cases, MND is sporadic with no apparent genetic link. However, genetic and environmental factors are also likely to be involved. MND is most commonly diagnosed in older men, with a ratio of 1.5:1 men to women.