Talking with Young People about MND

Information pack of six booklets (of 8 to 20 pages each) for parents making the difficult journey with motor neurone disease. Talking with young people about MNDIncludes one booklet for parents with suggestions and tips, and five other booklets.

  • free online
  • hardcopy available - free for members, families and carers in NSW,ACT andNT.

Contents include:

Talking About Motor Neurone Disease For Parents (PDF 317kb)

Talking About Motor Neurone Disease For 8 To 12 Year Olds (PDF 53kb)

Talking About Motor Neurone Disease For Teens (PDF 319kb)

Talking About Motor Neurone Disease For Friends (PDF 181kb)

Talking About Motor Neurone Disease For Schools (PDF 241kb)

Talking About Motor Neurone Disease For Health Professionals (PDF 209kb)

(c) MND Vic and MND NSW published June 2008

Other Youth Services

  • Carers Australia - Young carers

    There are programs available to support young carers including respite services, referrals and information, and counselling. For more information visit the young carers page of the Carers Australia website .

  • Kids and grief

    There is help out there for children and adults who experience grief and loss. Take a look at this one for young people between 6 and 18, and speak to your parents if you think this (or another program) is for you. Seasons for growth is “a program that strengthens the emotional and mental wellbeing of children and young people who are adapting to experiences of change, loss and grief in their lives.” Children & young people | The MacKillop Institute

  • Kids Helpline

    The Kids Help Line is a private and confidential telephone and online counselling service dedicated to help children and young adults. You can speak with Kidsline about carer stress, or other issues ranging from relationship breakdown and bullying to sexual abuse, homelessness, suicidal thoughts, depression and drug and alcohol usage. The helpline service receives more than one million calls per year. Kids Helpline is available 24/7 every day of the year. Phone: 1800 55 1800 Email counselling: This email address is being protected from spambots. You need JavaScript enabled to view it. Web Chat: https://kidshelpline.com.au/get-help/webchat-counselling

  • National Centre for Childhood Grief (NCCG)

    The National Centre for Childhood Grief (NCCG) is a service that provides specialist grief and bereavement counselling to children and families impacted by MND. Services include child and adult counselling, kids groups, adventure camps, parent and caregiver support groups as well as education courses and resources. The NCCG can support children aged 3-17 who are impacted by MND from the point of MND diagnosis and through to bereavement care. Contact your MND Advisor to support with referral or you can self-refer at This email address is being protected from spambots. You need JavaScript enabled to view it. or 1800 654 556