If you, a member of your family or a friend has recently been diagnosed with motor neurone disease it is likely that you are experiencing many confusing and confronting emotions. You may also be feeling overwhelmed by too much information or worried that you do not have enough information.
If you have been diagnosed with MND and would like to access support and services via MND NSW, please call our MND Info Line for further information or complete our Intake form online.
Do you have a question about motor neurone disease? Have you just found out that a friend or colleague has motor neurone disease and you don't know what to say? Are you thinking about attending a motor neurone disease information session but want to find out more before you make the decision about going?
Contact the MND Info Line.
We run regular online and in-person events, for more information please call our MND Info Line, see our Events page or visit: Online Information Sessions - newly diagnosed
MND education sessions are held throughout the year in Sydney and other areas of New South Wales and the Australian Capital Territory. There is usually no charge to attend an MND NSW education session if you are a person living with motor neurone disease, a family member, carer or friend. However, bookings are essential.
We can post or email (or both!) an information pack to you. You can read the information pack when the time is right for you. Contact MND Info Line to request your pack.
Do you need more information about living with motor neurone disease? MND NSW publishes booklets, information sheets and a regular newsletter. Many MND NSW publications are available free online for you to read, print or download.
You can get support from the MND Association, MND Clinics, government agencies, local healthcare services and community services. You can find out about services that may be available to you by contacting the MND Info Line.
You may also want to take a look at: I have MND. Now What? which is a 14 page A4 quick reference guide with online links to information, services and resources that may useful to people living with MND in NSW, the ACT and NT.
Additionally you might like to browse the online MND Hub Directory for people living with MND, which lists direct links to more than 200 services, programs, entitlements and resources that may be of interest.
Couldn't get to Ask the Experts or the SIG workshop?
Catch up at the MND NSW YouTube Channel.
