Living with MND

MND NSW conducts regular education, information and other events for people living with motor neurone disease, family members, carers and friends. These are usually held in Sydney at the MND NSW Centre in Gladesville or other local venues. Sessions are also scheduled in other areas of NSW and in the ACT.

There is usually no charge to attend an MND NSW education, information or other event for people living with MND. This includes the person with motor neurone disease, family member/s, carer or friend. However, bookings are essential.

10
Aug
2022

Newcastle and Hunter Support Group

10 Aug 2022 (10:45 am - 12:30 pm)

This is a group for people who are supported by MND Advisor Shannon, that live in the Newcastle and Hunter area.

This group will be held at Merewether Bowling Club.

11
Aug
2022

Campbelltown Support Group

11 Aug 2022 (10:00 am - 12:00 pm)

The Campbelltown Support Group meets bi-monthly at Campbelltown Arts Centre. This is a group for people who are supported by MND Advisor Laura, that live in South Western Sydney.

This group will be held in person at the Arts Centre.

11
Aug
2022

Kitchen Table Conversations

11 Aug 2022 (10:30 am - 11:30 am)
Online

Carers Kitchen Table Conversations - an opportunity for carers to share some time with other MND carers as we talk about our day to day lives.

Morning session

15
Aug
2022

North West Support Group

15 Aug 2022 (10:00 am - 11:00 am)
Online

The North West Support Group currently meets bi-monthly and is held online with your MND Advisor Savannah

16
Aug
2022

Living With Younger Onset Dementia

16 Aug 2022 (2:00 pm - 4:00 pm)
Online

This program provides education and support for people recently diagnosed with younger onset dementia.

This webinar is provided by Dementia Australia. 

17
Aug
2022

Illawarra Support Group

17 Aug 2022 (10:00 am - 12:00 pm)

The Illawarra Support Group meets monthly in the Warrawong area or online.

Venue for this group is Port Kembla Hospital

17
Aug
2022

ACT Support Group

17 Aug 2022 (10:30 am - 12:00 pm)

The ACT/Southern NSW Morning Tea is held bi-monthly at Deakin in Canberra or online.

This event will be in person in Deakin

17
Aug
2022

State of Play - Webinar

17 Aug 2022 (7:00 pm - 8:00 pm)
Online

State of Play: What is happening in the brain in MND?

Join MND Research Australia for this free online webinar. 

22
Aug
2022

Grief, Loss and Dementia

22 Aug 2022 (1:00 pm - 2:30 pm)
Online

This session provides an overview of the grief, loss and emotional impact of the changes caused by dementia.

This webinar is provided by Dementia Australia. 

25
Aug
2022

Kitchen Table Conversations

25 Aug 2022 (7:00 pm - 8:00 pm)
Online

Carers Kitchen Table Conversations - an opportunity for carers to share some time with other MND carers as we talk about our day to day lives.

Evening session

26
Aug
2022

Carer Wellness Program - Dementia

26 Aug 2022 (12:00 pm - 2:00 pm)
Online

This group session is designed to support positive health and wellbeing outcomes for a carer, family or friend of a person living with dementia.

This webinar is provided by Dementia Australia. 

31
Aug
2022

Future Matters: The importance of carers planning ahead

31 Aug 2022 (10:30 am - 12:00 pm)
Online

Planning for the future can be challenging for carers, many of whom avoid thinking about future needs for themselves and the person they care for, until they are in crisis.

This free online webinar is provided by Carers NSW.

01
Sep
2022

Introduction to Dementia

1 Sep 2022 (2:00 pm - 3:30 pm)
Online

This session provides an introduction to dementia, including an overview of different types of dementia, diagnosis, planning ahead and how to support someone living with dementia.

This webinar is provided by Dementia Australia. 

14
Sep
2022

Information session for people recently diagnosed

14 Sep 2022 (10:30 am - 11:30 am)
Online

Have you, or someone close to you, been recently diagnosed with motor neurone disease (MND)?

This online interactive information session will provide the opportunity for you and your family to have some of your questions answered.

15
Sep
2022

Western Sydney Support Group

15 Sep 2022 (10:00 am - 12:00 pm)

Western Sydney support group

This is a group meeting for people who are supported by our MND Advisor Cathy, that live in Western Sydney and the Blue Mountains.

15
Sep
2022

Kitchen Table Conversations

15 Sep 2022 (10:30 am - 11:30 am)
Online

Carers Kitchen Table Conversations - an opportunity for carers to share some time with other MND carers as we talk about our day to day lives.

Morning session

15
Sep
2022

Grief, Loss and Dementia

15 Sep 2022 (2:00 pm - 3:30 pm)
Online

This session provides an overview of the grief, loss and emotional impact of the changes caused by dementia.

This webinar is provided by Dementia Australia. 

17
Sep
2022

Link & Learn - Carers Weekend

17 Sep 2022 to 18 Sep 2022 (10:00 am - 3:00 pm)

These weekends are open to carers of people with MND, including our young carers.

This is a weekend to relax, revive and connect.

21
Sep
2022

Illawarra Support Group

21 Sep 2022 (10:00 am - 12:00 pm)

The Illawarra Support Group meets monthly in the Warrawong area or online.

Venue for this group is Port Kembla Hospital

22
Sep
2022

Central & Eastern Sydney Support Group

22 Sep 2022 (10:00 am - 11:00 am)
Online

This is an online group for people who are supported by MND Advisor Jodie, that live in the Eastern Suburbs, Inner West and Southern Suburbs of Sydney. 

28
Sep
2022

Chat and Connect - Online

28 Sep 2022 (10:00 am - 11:30 am)
Online

Everyone is welcome to join our next Chat and Connect, an online support group.

This group is open to everyone across NSW, ACT and NT, especially those living in regional or remote areas.

29
Sep
2022

North Sydney Support Group

29 Sep 2022 (10:00 am - 12:00 pm)

This is an in person support group for people who are supported by MND Advisor Lucy, that live in Northern Sydney and the Northern Beaches.

This event is being held at Hornsby RSL Club

29
Sep
2022

Kitchen Table Conversations

29 Sep 2022 (7:00 pm - 8:00 pm)
Online

Carers Kitchen Table Conversations - an opportunity for carers to share some time with other MND carers as we talk about our day to day lives.

Evening session

04
Oct
2022

Central Coast Support Group

4 Oct 2022 (10:00 am - 12:00 pm)

This is an MND Support Group for people who are supported by Advisor Kath, that live on the Central Coast.

This event will be held in Erina.

05
Oct
2022

MND Youth Hub

5 Oct 2022 (7:00 pm - 8:00 pm)
Online

MND Youth Hub - Online

For young carers aged 13 - 21 years across Australia

12
Oct
2022

Newcastle and Hunter Support Group

12 Oct 2022 (10:45 am - 12:30 pm)

This is a group for people who are supported by MND Advisor Shannon, that live in the Newcastle and Hunter area.

This group will be held at Merewether Bowling Club.

13
Oct
2022

Campbelltown Support Group

13 Oct 2022 (10:00 am - 12:00 pm)

The Campbelltown Support Group meets bi-monthly at Campbelltown Arts Centre. This is a group for people who are supported by MND Advisor Laura, that live in South Western Sydney.

This group will be held in person at the Arts Centre.

13
Oct
2022

Kitchen Table Conversations

13 Oct 2022 (10:30 am - 11:30 am)
Online

Carers Kitchen Table Conversations - an opportunity for carers to share some time with other MND carers as we talk about our day to day lives.

Morning session

15
Oct
2022

Day of Hope and Remembrance

15 Oct 2022 (1:00 pm - 2:30 pm)

We are pleased to announce we will be holding our annual Day of Hope and Remembrance this year in person on Saturday 15th October 2022.

17
Oct
2022

North West Support Group

17 Oct 2022 (10:00 am - 11:00 am)
Online

The North West Support Group currently meets bi-monthly and is held online with your MND Advisor Savannah

19
Oct
2022

Illawarra Support Group

19 Oct 2022 (10:00 am - 12:00 pm)

The Illawarra Support Group meets monthly in the Warrawong area or online.

Venue for this group is Port Kembla Hospital

19
Oct
2022

ACT Support Group

19 Oct 2022 (10:30 am - 12:00 pm)

The ACT/Southern NSW Morning Tea is held bi-monthly at Deakin in Canberra or online.

This event will be in person in Deakin

20
Oct
2022

Kitchen Table Conversations

20 Oct 2022 (7:00 pm - 8:00 pm)
Online

Carers Kitchen Table Conversations - an opportunity for carers to share some time with other MND carers as we talk about our day to day lives.

Evening session

29
Oct
2022

Link & Learn - Carers Weekend

29 Oct 2022 to 30 Oct 2022 (10:00 am - 3:00 pm)

These weekends are open to carers of people with MND, including our young carers.

This is a weekend to relax, revive and connect.

10
Nov
2022

Kitchen Table Conversations

10 Nov 2022 (10:30 am - 11:30 am)
Online

Carers Kitchen Table Conversations - an opportunity for carers to share some time with other MND carers as we talk about our day to day lives.

Morning session

16
Nov
2022

Illawarra Support Group

16 Nov 2022 (10:00 am - 12:00 pm)

The Illawarra Support Group meets monthly in the Warrawong area or online.

Venue for this group is Port Kembla Hospital

17
Nov
2022

Western Sydney Support Group

17 Nov 2022 (10:00 am - 12:00 pm)

Western Sydney support group

This is a group meeting for people who are supported by our MND Advisor Cathy, that live in Western Sydney and the Blue Mountains.

24
Nov
2022

Kitchen Table Conversations

24 Nov 2022 (7:00 pm - 8:00 pm)
Online

Carers Kitchen Table Conversations - an opportunity for carers to share some time with other MND carers as we talk about our day to day lives.

Evening session

29
Nov
2022

North Sydney Support Group

29 Nov 2022 (10:00 am - 12:00 pm)

This is an in person support group for people who are supported by MND Advisor Lucy, that live in Northern Sydney and the Northern Beaches.

This event is being held at Hornsby RSL Club

05
Dec
2022

North West Support Group

5 Dec 2022 (10:00 am - 11:00 am)
Online

The North West Support Group currently meets bi-monthly and is held online with your MND Advisor Savannah

07
Dec
2022

Newcastle and Hunter Support Group

7 Dec 2022 (10:45 am - 12:30 pm)

This is a group for people who are supported by MND Advisor Shannon, that live in the Newcastle and Hunter area.

This group will be held at Merewether Bowling Club.

07
Dec
2022

MND Youth Hub

7 Dec 2022 (7:00 pm - 8:00 pm)
Online

MND Youth Hub - Online

For young carers aged 13 - 21 years across Australia

08
Dec
2022

Campbelltown Support Group

8 Dec 2022 (10:00 am - 12:00 pm)

The Campbelltown Support Group meets bi-monthly at Campbelltown Arts Centre. This is a group for people who are supported by MND Advisor Laura, that live in South Western Sydney.

This group will be held in person at the Arts Centre.

08
Dec
2022

Kitchen Table Conversations

8 Dec 2022 (10:30 am - 11:30 am)
Online

Carers Kitchen Table Conversations - an opportunity for carers to share some time with other MND carers as we talk about our day to day lives.

Morning session

14
Dec
2022

ACT Support Group

14 Dec 2022 (10:30 am - 12:00 pm)

The ACT/Southern NSW Morning Tea is held bi-monthly at Deakin in Canberra or online.

This event will be in person in Deakin with a guest speaker.

15
Dec
2022

Kitchen Table Conversations

15 Dec 2022 (7:00 pm - 8:00 pm)
Online

Carers Kitchen Table Conversations - an opportunity for carers to share some time with other MND carers as we talk about our day to day lives.

Evening session