We’re getting involved in Dementia Action Week (16-22 September 2024), to help raise awareness about MND with Frontotemporal Dementia or MND/FTD. Dementia Action Week is a good time to share with you information about MND/FTD and the support available.

The MND NSW Info Line was busy in August, with a range of topics covered in this month’s Top-5 including, questions about Riluzole, the MiNDAus registry, financial assistance for carers and Kennedy’s Disease.

Is the skin on your bottom, heals, elbow, shoulder or the back of your head sore? Maybe you’re experiencing pain and discomfort from sitting in a chair or lying in bed for long periods without moving or shifting positions? You need pressure care!

Since 2010, Jill Paton has been coming to volunteer for MND NSW at our Gladesville office, often helping us to pack merchandise, and our Print News to ensure they get to you!

Shelley is putting in a mega effort to run 700km in 3 months to raise awareness about MND, and raise vital funds for MND NSW so we can be there for people living with motor neurone disease at every stage of their MND Journey. You can support Shelley by making a donation at mndblue.org.au/shellsmarathon

Over 6 years ago I had my first experience with Motor Neurone Disease as a carer and budding health professional. Since then, I have been so privileged to work with and care for clients with MND and support their families as best I can from diagnosis to end of life. This has led me to see such powerful and urgent gaps in our health industry, funding bodies, educational support, and allied health research.