December 2017

An Australian trial of the drug Tecfidera for MND was reported in 'The Age' newspaper on 21 December. The Australian TEALS (Tecfidera in amyotrophic lateral sclerosis) study is a multi-centre Phase 2 clinical trial to investigate the safety, tolerability and effectiveness of a drug called Tecfidera in people with MND. Tecfidera is currently used to treat relapsing multiple sclerosis (MS) in Australia by slowing down the progression of physical disability of MS.

Newcastle Italian Film Festival 2017

Thank you to Nick Moretti from the Newcastle Italian Film Festival for your continued support and donation of $15,000. This is the fourth year that MND NSW has been supported by the festival. Pictured is Nick Moretti (left) and Graham Opie, CEO MND NSW.

Ice Bucket Challenge Canberra

This is the third year that staff from the Department of the Environment and Energy in Canberra have supported our association with an Ice Bucket Challenge. The event, now known as The Scott Lisle Memorial Ice Bucket Challenge, is held in memory of a former colleague. We would like to thank Tara McGowan and Phil Bates who coordinate the event, and everyone who generously donated. A fantastic $7,000 was raised. Thank you for the continued support!

Craft Market Greystanes

A big thank you to the Craft Market Greystanes for choosing to support MND NSW with their annual market in November which raised $5,447. With 38 stalls booked for the day the market was a great success and a good day was had by all. One stallholder and one sponsor of the event have had family members who have suffered from MND so they were extremely happy to provide their support. Thank you also to St Pauls Catholic College, Greystanes, who made a donation from their annual car show and BBQ on the day.

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