August 2018

Walk to d'Feet MND Batemans Bay

Thank you to everyone who supported our Batemans Bay Walk on Sunday 26 August. Although there was a bit of rain overnight, the morning sun shone brightly. Many wonderful families and friends gathered to show their support for people with motor neurone disease. Thank you to the local Lions Club for their yummy sausage sizzle and the many stall holders who supported the Walk. A special thank you to the large contingent who made the trek across from Young and to the Go Go Girls who raised over $4500. It was a great day with over $11,500 raised.

We all want more people to be talking about motor neurone disease. 'Baker and the Beast' is an ABC Radio Life Matters 5 part series that first aired during August 2018. It is a no holds barred account of how one family and a community of friends are responding to a disease that has no cure. Mother of three, Cath Baker knows the beast that is motor neurone disease (MND). As a critical care nurse she’d seen what this disease did to her friend Angie Cunningham. Then, in the cruellest of coincidences, Cath too was diagnosed. You can read more or listen to/download the series here.

On 21 August ABC TV aired 'The Village' featuring former Foreign Correspondent reporter Sean Dorney who has MND, as he visited his beloved Papua New Guinea. You can catch up on this episode on ABC iView here and read the backstory from Cameraman, Craig Berkman, here. Many families living with MND will be able to find a lot in common, "Sean and Pauline take a fairly practical and good-humoured approach to dealing with this increasingly frustrating condition, so you might wonder where the emotion comes from for the rest of us since we're not the ones dealing with it...

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