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To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts. 

You can help MND NSW continue supporting people with motor neurone disease by making a donation here.

Lily’s Story 

When Lily’s Dad was diagnosed with Motor Neurone Disease in July last year, at first she thought he was going to say that he had cancer. Lily was preparing for that, as she’d already lost so many family members to cancer in recent years. 

To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts.

You can help MND NSW continue supporting people with motor neurone disease by making a donation to our Winter Appeal here.

Elliot was diagnosed with MND at just 19 years of age. He was enjoying his first semester at university and working one day a week at a local financial advisory firm.

The early signs for Elliot that something was wrong were frightening.

Hammond Care have a range of cook books that provide nutritious and appealing meal ideas that cater to an array of dietary or swallowing needs. The books were written in collaboration with a chef, speech pathologist and palliative care specialist and aim to provide practical advice so food can remain a pleasure and a comfort.

People living with MND are often faced with difficult decisions for managing their symptoms and maintaining their quality of life as the disease progresses.

Some of the options people are asked to consider are gastrostomy, genetic testing, assisted ventilation, communication equipment and advanced care planning.

Want to see your design on our latest merch AND help support people living with motor neurone disease? Then make sure you enter our tea towel design competition!