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The Australian Government is developing a Charter of Aged Care rights and you can comment on the draft Charter before 10 October 2018. The Charter will provide protection for the rights of aged care consumers. Make sure the MND voice is heard so people with MND aged 65 years and over get the care and support they need and deserve. Read more and provide your comments here https://consultations.health.gov.au/aged-care-policy-and-regulation/the-australian-charter-of-aged-care-rights/

A big thank you to Alana Sargood and the wonderful teachers from Bowral High School who participated in the Ice Bucket Challenge raising over $2700 for MND NSW. 

The 9th National MND Australia Conference, hosted by MND South Australia, was held on Friday 31 August. The conference MND Care: Informing, Influencing, Innovating attracted over 200 delegates with diverse health, allied health and community support backgrounds from around Australia and New Zealand.

About one out of every ten people with MND will receive a diagnosis of ‘motor neurone disease with frontotemporal dementia' or MND/FTD. Often the symptoms of dementia precede the motor symptoms, sometimes by a number of years. The 11th International Conference on Frontotemporal Dementias (ICFTD) is on in Sydney during November and running concurrently with the ICFTD 2018 program will be a specialist day on Tuesday 13 November focused on issues and challenges for carers.

The MND NSW e-news September 2018 edition was emailed to members and subscribers on 29 August. You can read this edition here. Get the e-news delivered your inbox by subscribing to the MND NSW e-news.