Thank you to a special young lady, Shailee Sullivan, who gave her time before school each morning during the last week of June with a fundraising and merchandise stall for MND NSW. Shailee's fundraiser was a great success and she raised a fantastic $1,000. Thank you also to the Umina Beach Public School community who gave their support. Congratulations Shailee!

A big thank you to the teachers and pupils of Holy Spirit School in Lavington who recently raised over $2,000 for MND NSW with an ice bucket challenge. A special mention to Jordan Delaney who individually raised $700 towards this total, pictured left completing the ice bucket challenge. Thanks Jordan, love your MND NSW T-shirt.

The New South Wales state parliament is currently holding an inquiry into the NDIS and disability in NSW. They want to hear about peoples experience with the NDIS and we encourage people with MND to share their experiences. Whether you are having a good experience or a bad one, we all need to make sure our voices and stories are heard. The closing date for submissions is Thursday 9 August 2018. The inquiry

Researchers will be recruiting 90 people across NSW, QLD, SA, WA and VIC who meet the criteria for enrolment to participate in the TEALS Study - a multi-centre Phase 2 clinical trial to investigate the safety, tolerability and effectiveness of a drug called Tecfidera in people with MND (The study to Assess the Efficacy and Safety of Tecfidera in Patients with Amyotrophic Lateral Sclerosis - TEALS, Study ID ACTRN12618000534280).

Researchers are currently recruiting people from QLD, SA and WA who meet the criteria for enrolment in the Study to Evaluate Efficacy, Safety and Tolerability of CK-2127107 in Patients With Amyotrophic Lateral Sclerosis (ALS) (FORTITUDE-ALS) (Trial ID NCT03160898). This is a multi-centre Phase 2 clinical trial investigating the safety, tolerability and effectiveness of a drug called reldesemtiv (also known as CK-2127107) in people with MND. 

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