Thank you to Don McMurray who has again organised a musical concert to support MND NSW. The enjoyable afternoon included a variety of musical items and performances, with this year's concert raising $2,223. Thank you also to MND NSW Ambassador, Patti Conway, who attended the event.
The MND NSW e-news March 2017 edition was emailed to members and subscribers on 28 February. You can read this edition here. Get the e-news delivered your inbox by subscribing to the MND NSW e-news.
This research update is produced by the MND Research Institute of Australia - the research arm of MND Australia. Read the latest MND research news.
If you are from a family with familial MND and there is a known genetic fault in the family, you are invited to participate in an interview with researcher Ashley Crook from Macquarie University who is undertaking a study investigating experiences of familial MND, receiving genetic information, and any subsequent decisions made such as whether to speak to a genetic counsellor or to have genetic testing. It is hoped that information from this research can guide the MND care and genetic counselling community on best practice guidelines for familial MND. See here for more info.
After heavy rain all night, we prepared ourselves for the worst, but Mother Nature was kind to us with the early morning dawning bright and dry. This was the fourth Walk to d’Feet MND held in the Illawarra and the Illawarra showed up in their hundreds, lots of smiling faces and panting puppies. Our Walk to d’Feet MND events attract some large family groups and the Illawarra Walk was no exception, with groups of 25 and 30 people there to show their support for people living with MND, or to remember a loved one who has died from MND. Thank you to everyone
